Friday, September 11, 2009

Third Surgery - August 24th

Whew! What a summer! It's taken a while to post this because it's been such a busy month! Our 5-year-old started kindergarten and we've had lots of fun trips to the lake with friends and guests coming into town. Between that, work and everything else, the weeks are flying by.

3rd Surgery. Ryan's 3rd surgery on the 24th went really well. His surgeon reported that he treated more vessels and the ones already treated remain treated (no additional leaks in those). We were thrilled to hear that he really sees progress this time and wants to wait 3 months before doing another round (instead of 2). That will give some time for this latest avastin injection to take effect and for some of the exhudiate (the yellow garbage causing his vision loss) to be absorbed by the body.

On November 23rd, he will examine him again under anesthesia and perform cryotherapy to any remaining leaking vessels, and there is a chance (fingers crossed!) it will be the last time he needs the cryotherapy. After that, he'll have an exam under anesthesia every 3 months until he feels confident that there is no more leaking. Then, once a year, he'll be examined under anesthesia. The problem with this disease is that the leakage can recur at a later date, so he'll always need to be monitored.

Glasses? Well, let's say we're trying. Our sweet, sweet friends who are eye doctors sent Ryan 3 pair of very nice glasses. He likes them for a few minutes until the novelty wears off, then they end up on the floor, on the playground at school, or missing for a few days. It's difficult to convince a 3 year old to wear glasses when they don't actually improve his vision. His are for protection purposes only. I think the closer he gets to 4, the easier it will be and even this week, he's getting better about keeping them on (a little bribery goes a long way!)
In any event, he looks adorable in them. Here is a photo:

And seconds later, without them, sneaking out into the garage to play:

And last, a photo of our daughter on her first day of kindergarten. It's been an adjustment for Ryan, too, since he's so used to having his sister in the next classroom. They are growing up!